Testimonial... - tanTALK

Don Smith · 10-31-2014, 10:10 PM

I have first hand knowledge (I was diagnosed with myasthenia Gravis several years ago) that maintaining an optimal level of vitamin D is necessary in order to cope with neuromuscular disease. Once I figured out that keeping my vitamin D level >180 nmol/L (and continuing to take Mestinon) I have had almost no symptoms and/or problems. Before that (even though I was taking Mestinon) I had continual optical (try driving when you see two VW's in front of you) problems and muscle weakness.

The "message" is this: If you know someone suffering from a neuromuscular disease (like MG) do them a favor and tell them to supplement their medicine with UVR exposure and vitamin D supplements.

Study: Vitamin D deficiency more prevalent in neuromuscular conditions

A study presented at the annual meeting of the American Association of Neuromuscular & Electrodiagnostic Medicine (AANEM) adds more credence to a growing awareness of the high prevalence of vitamin D deficiency in neuromuscular disease.

"Previous work has shown vitamin D deficiency to be quite common in other neurological disorders such as multiple sclerosis, myasthenia gravis, and Parkinson's disease. This study suggests this concern may be more prevalent in other neuromuscular conditions as well," said Ileana Howard, MD, AANEM News Science Editorial Board member.

Vitamin D supplementation has been suggested to improve function in frail elderly patients at risk for falls, as well as individuals with myasthenia gravis and Parkinson's. The impact of vitamin D deficiency and supplementation on function in other neurologic conditions has yet to be explored.

"While the connection between vitamin D deficiency and neurologic disease is likely complex and not yet fully understood, this study may prompt physicians to consider checking vitamin D levels in their patients with neurologic conditions and supplementing when necessary," said Dr. Howard.

Source: American Association of Neuromuscular & Electrodiagnostic Medicine

http://www.news-medical.net/news/201...onditions.aspx

10-31-2014, 10:10 PM	#1 (permalink)
Don Smith Join Date: Feb 25 2000 Location: Tucson, AZ Posts: 1,643 Rep Power: 26	Testimonial... I have first hand knowledge (I was diagnosed with myasthenia Gravis several years ago) that maintaining an optimal level of vitamin D is necessary in order to cope with neuromuscular disease. Once I figured out that keeping my vitamin D level >180 nmol/L (and continuing to take Mestinon) I have had almost no symptoms and/or problems. Before that (even though I was taking Mestinon) I had continual optical (try driving when you see two VW's in front of you) problems and muscle weakness. The "message" is this: If you know someone suffering from a neuromuscular disease (like MG) do them a favor and tell them to supplement their medicine with UVR exposure and vitamin D supplements. Study: Vitamin D deficiency more prevalent in neuromuscular conditions A study presented at the annual meeting of the American Association of Neuromuscular & Electrodiagnostic Medicine (AANEM) adds more credence to a growing awareness of the high prevalence of vitamin D deficiency in neuromuscular disease. "Previous work has shown vitamin D deficiency to be quite common in other neurological disorders such as multiple sclerosis, myasthenia gravis, and Parkinson's disease. This study suggests this concern may be more prevalent in other neuromuscular conditions as well," said Ileana Howard, MD, AANEM News Science Editorial Board member. Vitamin D supplementation has been suggested to improve function in frail elderly patients at risk for falls, as well as individuals with myasthenia gravis and Parkinson's. The impact of vitamin D deficiency and supplementation on function in other neurologic conditions has yet to be explored. "While the connection between vitamin D deficiency and neurologic disease is likely complex and not yet fully understood, this study may prompt physicians to consider checking vitamin D levels in their patients with neurologic conditions and supplementing when necessary," said Dr. Howard. Source: American Association of Neuromuscular & Electrodiagnostic Medicine http://www.news-medical.net/news/201...onditions.aspx Last edited by Don Smith; 11-01-2014 at 09:31 AM.

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